|
|
|
While lobbyists, parents, and educators are rushing to put GHB into Schedule I status, there is another voice crying out that GHB (in Clinical [Intermediate or Phase II] Stage under the name Xyrem™) is a necessary and valuable medicine. While GHB has shown promise in treating the horrible disorder Narcolepsy, and especially a form of it called Cataplexy, viewers need to realize that it is components of GHB that aids in this treatment. This does not make it okay for poeple to whip up Internet recipes of GHB, or sell GHB analogs without FDA approval and warning labels. It is THIS part of GHB that legislators are trying to curtail - not legitamate uses. Orphan Medical Reports Initial Success in their Xyrem Study The therapeutic range of GHB is far too narrow to be safe. Yes, it shows HOPE for people with severe narcolepsy and cataplexy but the research should continue until a longer acting, safer cousin to GHB is found. It won't be GHB.....it will be "GHQ" or "GHY" or whatever. Drug makers would love to just stop at this level and just make tons of money. That's using people with narcolepsy to make big bucks, considering that the true market for narcolepsy/cataplexy treatment is quite small. Even the top narcolepsy/GHB researchers have said that the final product is several years from development. There are less than 120,000 people in the country with narcolepsy/cataplexy. We probably have that many addicted deeply to this drug (withdrawal is LIFE ENDANGERING as we now know). And, of course, there is the sexual assault issue with suspects hiding behind GHB on an increasing basis; GHB has forever changed the face of sexual assault investigations and prosecutions. And, we have more than that frothing up blood through the nose from pulmonary edema caused by GHB. One young man has himself overdosed at least 50 times from this junk. Very little is known about how it works and why it picks one victim over another for death. And, a whole lot of research is needed to figure out why many of them show enlarged hearts (possibly related to the pulmonary edema.....left heart valve failure, etc.). And NO, it is not just when mixed with other drugs or alcohol (even if it was dangerous only when mixed----that's a very narrow safety range). There is just too much NOT known about GHB to call it safe. The truth is-----------GHB is a deadly drug. Will Schedule I status of GHB mean no more treatment for Narcolepsy?Even a Schedule I drug can be developed
for legitamate medical purposes. Other drugs have been developed while in
Schedule I initially. Anyone who tells you that the research would be stopped by
properly scheduling this drug is lying to you......and using your situation for
their gain.s. ~ Trinka Porrata contributed to this section. Orphan Medical Reports Initial Success in their Xyrem Study ------> Here is a viewer's comments on how the abuse of GHB is making it harder for people to receive supervised medical benefits from GHB in regard to the debilitating disorder called narcolepsy. These opinions are the express opinions of the writer. We have included them to show another view, but neither support nor discredit the comments (remember, we are not medical professionals here): NAME: Sandra Mayer Here is a different angle to the GHB problem, one you probably haven't yet thought of. There actually are those of us who NEED this drug because we have a bizarre sleep disorder called Narcolepsy. Narcolepsy is more a muscle disorder than a sleep disorder. I fall continually and drop things all the time because my muscles "go to sleep" while I am wide awake. Narcoleptics need day time stimulants to stay awake and night time depressants to help us sleep. We are always, continually dreaming, 24/7. Because we are always in a state of REM (dreaming state) we never get to the restorative stage (repair) of sleep and as a result many of us have severe muscular pain. I am an Art professor and use to work for Star Trek making wall sculpture. Because of Narcolepsy I no longer can work. I am disabled. GHB is my only hope for once again living a normal life. The drug GHB has already been proven to help to overcome most of Narcolepsy's symptoms, at least the more severe ones. GHB comes the closest to a cure for Narcolepsy. Although my heart goes out to those families who have lost a loved ones to the abuse of GHB it's precisely because of them, those who use GHB for recreational purposes, that our lives as chronically ill people have become a little more desperate. Now. what use to be readily available on Health Food store shelves is so highly illegal that those of us who desperately need GHB to change our neuro chemistry can not get it and would be imprisoned if we possessed it. We only can obtain it by being in a study backed by a pharmaceutical company who plans to market it for prescription use only. One out of 200,000 people have Narcolepsy. I am one of the lucky ones that got into a GHB drug study. Only 200 of us in the United States have been fortunate enough to legally have this "cure" for our desperate disease. This drug will end up costing a fortune now that it will be prescription only. Many of us without insurance will never be able to receive it. This is all due to people who use GHB for fun and entertainment. Just thought I'd throw in another reason not to abuse this chemical. If you are fortunate enough to have normal brain chemistry, praise God and don't mess it up by taking GHB. Be kind to yourselves and those of us who need GHB to come close to having healthy brains: JUST LEAVE GHB ALONE. Sandra Mayer |